Details for Steve’s Memorial Service

Steve Leverenz Memorial Service
When: Saturday, January 9th 2016
Visitation: 10:30 a.m. | Service: 12:00 p.m.
Followed by a light lunch
Where: The McNamara Alumni Center | Google Map
200 Oak St. SE #100, Minneapolis, MN 55455
Parking info: Parking is available in the adjacent University Ave Ramp (1926 University Ave SE, Minneapolis, MN 55455) where we have blocked off 150 spaces for memorial guests. Additional parking is available in the Washington Ave Ramp (501 Washington Ave SE). Parking in both ramps will cost $10 cash-only upon entry.
PDF Version – Memorial Service, Map & Obituary

January 5th, 2016|

Memorial Service – January 9, 2016

Steve’s family is working to finalize details for his memorial service. …but for now…
Memorial Service will be held on Saturday, January 9th – late morning to mid afternoon timeframe expected.

Details will follow on Mon/Tues — due to the holiday weekend it has been difficult to finalize things.
Details will be posted on the blog at 

Also, please remember to take time to share your favorite photos or special memories of Steve at the DropBox site. 
To leave comments on this blog without registering email to and we will post for you.

January 3rd, 2016|

Steve’s Journey ……. Memorial & Tributes

Steve Leverenz Memorial Service
When: Saturday, January 9th 2016
Visitation: 10:30 a.m. | Service: 12:00 p.m.
Followed by a light lunch
Where: The McNamara Alumni Center | Google Map
200 Oak St. SE #100, Minneapolis, MN 55455
Parking info: Parking is available in the adjacent University Ave Ramp (1926 University Ave SE, Minneapolis, MN 55455) where we have blocked off 150 spaces for memorial guests. Additional parking is available in the Washington Ave Ramp (501 Washington Ave SE). Parking in both ramps will cost $10 cash-only upon entry.

In lieu of flowers memorial donations may be made in his name to the Pulmonary Fibrosis Support Group of Minnesota. Online donations may be made here or checks can be mailed to: PO Box 390498, Minneapolis, MN 55439-0498.
McNamara Alumni Center Map

Steve Leverenz, age 58, passed away on Thursday, December 31st, 2015, at the University of Minnesota Medical Center from Pulmonary Fibrosis while surrounded by his loving family and close friends.

Steve was born June 15th, 1957 and grew up in West Bend, WI. He attended Decorah Elementary, Badger Middle School, and West Bend West High School graduating in 1975. During high school, he lettered in four sports and became an eagle scout. Steve received a Bachelors of Science in Mechanical Engineering from the University of Wisconsin, Madison in December […]

December 31st, 2015|

Three Steps Forward, Two Steps Back Tue 12/29

I kind of wish I had posted a blog yesterday morning but I thought I would hold out– thinking I would have even better news to report….getting greedy. Steve showed a lot of improvement over the weekend from late Saturday through Mon afternoon. His lungs were showing signs of increased flexibility. They were able to decrease a lot of the support and cut back on sedatives. He was starting to react to what are probably quite uncomfortable repositioning and pokes and prods that occur throughout the day— a furrowed brow, raised hand or leg, the kind of moves you see your kids make when they are dreaming. When I was explaining to my brother that his muscles will have atrophied significantly during this process, Steve literally started doing some leg lifts…He is LISTENING!

Unfortunately he couldn’t stay relaxed enough to work with the ventilator on the reduced sedatives. He took a major step back yesterday evening and early this morning……three steps forward and two back. This is pretty typical for people struggling with the types of breathing conditions and support that he has.
This morning they had to return him to much higher levels of oxygen support and increase the sedatives….disappointing but […]

December 29th, 2015|

T+142 Oxygen, Frankincense and QiGong….

Oxygen, Frankincense and QiGong….

We hope you have all had a chance to celebrate the joy and peace of Christmas in your own way or with family or friends over the past couple of days. We are so thankful for all of your prayers, cards and messages of support, and the goodies delivered on the front porch.

I was thinking of the gifts brought to Jesus…of course this doesn’t happen for a little while yet in the Christmas story…..but, anyway, I was thinking of what Steves wishes for Christmas would be if he could voice them.

I can’t think of anything that would get higher billing on Steve’s Christmas list than Oxygen…..vaporous gold going straight into his lungs. His oxygen levels and related stats have made some slight improvements over the past couple of days. ..indicators are that they are letting him take a little bit deeper breaths and have reduced the amount of pressure needed to get it into the lungs..both while keeping his saturation and blood gases steady.

Frankincense…just sounds sweet..but actually it has a nice smell too. On Christmas Eve the Drs gave me permission to go ahead and apply essential oils on his feet, etc. Given the season and the […]

December 27th, 2015|

T +140 Christmas Greetings

Unfortunately Steve is not back at the keyboard yet, but we did find this draft of a Christmas greeting he had started and we want to pass it on as a greeting from Steve himself….it’s still a bit rough but we want to keep it in his voice.

From Steve:

I have decided it may be easier to use e-mail and a reference to the website and blog to get our annual Holiday letter and family update out to our friends and family.  This way I won’t have to repeat information related to my Hodgkin’s Lymphoma journey.  It may be a bit on the techie side but perhaps also a bit “greener” in terms of energy consumption!  You can always opt not to read it as well but for those of you willing here we go!

It seems appropriate to start with a family photo.  Our children are now adults and growing with new opportunities and relationships.

Megan our youngest will complete her undergraduate degree in Advertising at Drake in May.  She was very busy interning for multiple companies while carrying full academic load.  She was fortunate to work with a Marketing agency in Des Moines.  She was also very active in her sorority Kappa […]

December 25th, 2015|

T + 139

Afternoon everyone!

Just a heads up that after today we will just post the daily updates to Steve’s blog — no log in required to read – you only need to log in if you want to leave a posting.

The blog site is simply his name — i.e. — Click on “Blog & News” navigation to see the latest blogs.

Wed. afternoon 12/23 update

Steves dad, John, and Phyllis arrived yesterday afternoon from AZ….a little snow dusting to welcome them but otherwise not bad.

I guess Steve knew he better get on his game since his Dad is here so he behaved himself last night and this morning…enough that the Drs decided to take him off the paralytics about 11:00 am and see how he would do….

So far so good …
This eve they have kept him off the paralytics but still rotate him to his belly for a bit to keep the lungs flexible and working on the backside, etc.

If that goes well they would expect to consider a very slight decrease in the sedatives tomorrow afternoon …when he returns to his back.

The only other news is that a little bit of new fungal growth started in the lab from the bronchoscopy….asperilogous (?sp). It wasn’t enough to say for certain […]

December 24th, 2015|


Hi everyone,

This is Erin and Megan, Steve’s daughters. We will be taking over dad’s blog this week, as unfortunately, he is unable to write it himself. There have been some events in the last several days that we felt we needed to update you on. We apologize that we haven’t been able to update everyone as fast we would have liked, but here is a general outline for what’s been happening. Forgive us for not going too in-depth today (or this might turn into a novel, and no one wants that). But, we hope that by giving you a foundation of what’s going on, we will be able to update the blog more frequently and concisely in the coming days/weeks.

VERY Early Thursday morning, Steve was having significant trouble breathing. Unlike…ie, not even close… to anything he had experienced to date. Even after maxing out the home O2 machine, he couldn’t get enough so he-in an ambulance- and mom headed to UMMC ER. Fortunately they can deliver a lot more oxygen quickly so Dad was feeling pretty good by the time they got to the ER.

I (Megan) arrived home from college home an hour after dad arrived in the University of […]

December 23rd, 2015|

T+122 Update

Recovery from Thanksgiving was priority number one last week.  It was so nice to see and connect with family and friends over the holiday.  We had a houseful and a wonderful time playing games, eating too much and watching professional and college football.  Our official celebration was on Friday to allow our kids an opportunity to spend Thursday with their friend’s families.   The week went by quickly with many Qigong and energy healing sessions.  I tried acupuncture for the first time and as well and a follow on appointments over the next two weeks.  I am also beginning to understand that one of my physical strengths had become an energy sink for my distress, anxiety and fear.  My shoulders seem to be a magnet for steel in this regard!  All of the folks who have done energy work as well as physical therapy have commented on built up tension they feel and sense.  I can attest to the sharp pains and tingling sensations I feel when my shoulders are being worked on.  I imagine we all have these depositories that need to be addressed as some point in time before causing more serious complications down the line.

I continue to […]

December 7th, 2015|


Today is T+111 and I am reflecting on the journey and grateful for the support, kindness, love and transformation my journey with Hodgkin’s Lymphoma has brought to me.  While there are always a few curves in the road to navigate directionally I am doing well and so happy to be alive and experiencing every moment.  Joan and I have been trying to use my time of recovery to good use.  One of the best opportunities we have had is to participate in a workshop called “Renewing Life”, developed by Pathways.  We have learned so much about ourselves and the opportunities our current situation is presenting us.  Some of the materials I am sharing are referenced in the course, but the stuff is too good not to share.  The quote…..

“Life is accepting what is and working from that.” – Gloria Naylor 

comes to my mind as I am slowly learning to not worry about days, weeks, months or years down the road but focus more on the gift each day brings.   Just imagine how much of life we miss each day due to constant thought about the future.  Each day there are moments to cherish but they are often never accounted […]

November 25th, 2015|